Defeat Duchenne

 

 

When Joseph was diagnosed with Duchenne muscular dystrophy 10 years ago, our whole world was turned upside down. Imagine hearing things about your little boy’s future that included words like “heart failure” and “loss of ambulation” and “ventilator.” I knew for sure that I would do two things for him. First, I would do anything to help him and I would leave no stone unturned to find a treatment for Duchenne, and perhaps, someday, a cure. Second, I would tell our story and I would be Joseph’s voice.

 

The progression of Duchenne has been incremental and heartbreaking. The physical losses are constant – each one more significant than the last. Years ago, I was devastated with the realization that Joseph would never be able to ride a bike. And while I was overwhelmed in that moment, each heartbreaking loss paled in comparison to the impact of what came next.

 





 

My commitment to leave no stone unturned has remained unchanged. What has changed, however, is my role as Joseph’s voice. I remain his advocate, but Joseph is now 16 and has his own wonderful, powerful voice. This year, I asked him to help tell our story. Here is Joseph’s response:

 

 

 

My greatest hope is that we’ll find a treatment for Joseph, and he’ll continue to bravely approach life with his happy, contagious attitude. You can still help us find a treatment in time to save Joseph. Now more than ever, we need you to help accelerate promising research to find treatments for Joseph and all the other boys battling Duchenne.

 

Thanks to the generosity of the US LBM Foundation, your gift will be matched dollar-for-dollar up to $50,000. Your gift will have twice the impact if you take action by December 31st. Please give now.

 

Sincerely,
 
Marissa Penrod

Founder/Joseph’s mom
 
P.S. Your gift will fund research so Joseph can fulfill his dream of becoming a sportscaster.

 






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