You Can Help Defeat Duchenne


This summer Joseph lost his ability to walk. As a mother, there’s nothing more heartbreaking than watching him struggle to get dressed in the morning, feed himself and make it through a day of school. Just when other 13 year old boys are playing baseball and thinking about high school and college, our energy is focused on keeping Joseph’s heart and lungs working.

Joseph’s journey with Duchenne muscular dystrophy began when he was a seemingly healthy five-year old who was a bit uncoordinated. That year he was diagnosed with Duchenne – a brutal neurological disease that has progressively robbed Joseph of the use of his limbs, and will attack his heart and lungs if medical researchers don’t find an effective treatment.

I’m writing to you today not only as the founder of Team Joseph, but as Joseph’s mom. We have reached a critical milestone in Duchenne research. Because of you, we are closer to a treatment today than ever and must continue to fund work such as Dr. Kevin Flanigan’s at The Research Institute at Nationwide Children’s Hospital. Dr. Flanigan explains the urgency, “Our innovative gene therapy research has brought us to the point where we are ready to begin a clinical trial for a potential treatment – once the production of the therapeutic agent is funded, we can begin immediately.”

Your support will bring us closer to a game-changing treatment for Joseph and other children with Duchenne. Joseph is a fighter, a bright ray of sunshine and, with your help, he and others can win their battle.

You can help families share more holidays, celebrate more birthdays, dream more dreams. You can help accelerate Duchenne research for generations of boys battling this devastating disease.

With gratitude,




Marissa Penrod
Joseph’s Mom

P.S. Because of your support, Joseph can win his battle!

The more you give, the faster researchers will find a life-changing treatment for boys like Joseph battling Duchenne every day.