COMMERCE, Mich. – Team Joseph was selected by Northwestern University Dance Marathon (NUDM), one of the largest student-run philanthropies in the United States, as the primary beneficiary for funds raised in 2014.
In NUDM’s 40-year history, Team Joseph is only the second organization outside of Chicago and the first organization dedicated to Duchenne, to be selected as NUDM’s primary beneficiary.
“Team Joseph is incredibly proud to be selected as the primary beneficiary of NUDM 2014,” said Marissa Penrod, Team Joseph founder and CEO. “This partnership will bring added awareness and critical funding to Duchenne research and will help us leave an important legacy. The generosity and the compassion of Northwestern students, alumni and supporters will have a profound impact on families and scientists working to defeat Duchenne.”
Proceeds from NUDM will fund cutting-edge research to find a treatment or cure for Duchenne and support families with expenses directly related to caring for a child with Duchenne.
“The Team Joseph story is rousing and motivating, built around saving the life of an inspiring boy and children all over the world diagnosed with Duchenne,” said Anna Radoff, NUDM executive co-chair. “The energy and resources NUDM provides will move us closer to a cure for this devastating disease.”
After being chosen as a 2014 beneficiary finalist by NUDM Executive Co-Chairs Radoff and Josh Parish, Team Joseph was chosen to be NUDM’s primary beneficiary by a unanimous decision from the Executive Board.
In its five-year history, the Detroit-based organization has helped to successfully fund a number of forward-looking research initiatives, including those at the Dowling Lab at the University of Michigan, Phrixus Pharmaceuticals, the Children’s Hospital Oakland Research Center (CHORI) and University of Washington.
The additional funds provided by NUDM will allow for expansions of these programs and help ensure a treatment or cure for Duchenne is found sooner. In addition, Team Joseph intends to initiate a Family Assistance program in the Chicago area to support families affected by Duchenne.
Since 1975, Northwestern students have raised more than $14 million for more than 30 different beneficiaries, raising more than $1 million in 2013 alone. The dance marathon includes popular bands and performers, along with more than 750 dancers, each raising at least $400 for the honor of dancing in support of beneficiaries. The 2014 Dance Marathon is held March 7-9.
About Duchenne muscular dystrophy:
Duchenne muscular dystrophy is a rapidly progressing degenerative genetic muscle disorder, primarily affecting young boys, which causes loss of muscle mobility and function. In fact, 99 percent of the almost 20,000 new cases each year are boys; meaning 1 boy out of every 3,500 will be diagnosed. There currently is no treatment or cure for Duchenne muscular dystrophy.
About Team Joseph:
Team Joseph is a 501c3 non-profit organization with a mission to aggressively fund cutting-edge research to find a treatment or cure for Duchenne muscular dystrophy. Formed around the fight of Joseph Penrod, Team Joseph began with a mom who wouldn’t let her son be defined by his diagnosis, and with the support of family, friends and an army of volunteers, has evolved into the movement it is today. For more information about Team Joseph, visit www.TeamJoseph.info.