July 17-18, 2024 1-5 PM ET each day
100% virtual
This is the first conference exclusively FOR those with Duchenne – created BY those with Duchenne.
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ABOUT

What Now type lockup
Driven by a planning committee of older adolescents and adults with Duchenne, we’ll focus on topics that YOU have told us are important to you. 

This gathering will be a place to learn, to connect with each other and to have some fun while we focus on how to move into and live in adulthood with Duchenne.  

“What Now?” is the event name and it’s the guiding question. When you’re heading toward and through adulthood with Duchenne, how do you give direction to your own life?
Driven by a planning committee of older adolescents and adults with Duchenne, we’ll focus on topics that YOU have told us are important to you. This gathering will be a place to learn, to connect with each other and to have some fun while we focus on how to move into and live in adulthood with Duchenne.  

“What Now?” is the event name and it’s the guiding question. When you’re heading toward and through adulthood with Duchenne, how do you give direction to your own life?

How do you look to the future? Beyond high school and well into adulthood? How do you have autonomy, dreams, and purpose? What about a career? A job? Friendship? Romantic relationships? How about mental health and anxiety? What about travel and finances?

We’ll talk about it all!

What about family, friends and community members? We love them, too! And we know how important they are to navigating life with Duchenne. We’re going to celebrate that. At the end of the conference, we’re going to open the (virtual) doors and everyone is welcome! See below to register.
How do you look to the future? Beyond high school and well into adulthood? How do you have autonomy, dreams, and purpose? What about a career? A job? Friendship? Romantic relationships? How about mental health and anxiety? What about travel and finances?

We’ll talk about it all!

What about family, friends and community members? We love them, too! And we know how important they are to navigating life with Duchenne. We’re going to celebrate that. At the end of the conference, we’re going to open the (virtual) doors and everyone is welcome! See below to register.
We are committed to access for everyone, so this event is FREE and 100% virtual. No travel, no hassle and NO cost.
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Registration options

Individual with duchenne

Wednesday, July 17 and Thursday, July 18, 2024
1-5 PM Eastern Time each day

With a mix of dynamic, expert speakers including adults with Duchenne, we’ll cover ideas and topics most important and relevant to you!

If you are at least 14 years old (or in high school) and have Duchenne, then this registration is for you!

Register for this option only if you have a diagnosis of Duchenne Muscular Dystrophy.

COmmunity member

Thursday, July 18, 2024
4-5 PM Eastern Time

Select this registration if you do not have a diagnosis of DMD. 

For the last hour of the conference we’re going to open the (virtual) doors and have a Community “Campfire” where everyone is welcome.

If you’re a parent, friend, family member, sibling, neighbor, teacher, healthcare provider, industry partner or anyone who cares about someone living with Duchenne, please join us for this special hour.

Thank you to our

What Now type lockup

Conference Sponsors