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duchenne family
assistance program

You are not in this alone.
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Every child and young adult battling Duchenne deserves the equipment, access to the best care, and the resources that they need. Every family deserves support and partnership so they don’t have to navigate a complex medical system alone.

The Duchenne Family Assistance Program provides personalized assistance, guidance and financial support to individuals and families affected by Duchenne Muscular Dystrophy.

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Thank you for helping make Seph's accessible bathroom a reality!! What a blessing and relief it is to be able to move safely in a space large enough for both of us without worry of falling...Team Joseph is a blessing to the Duchenne Community!

Lori, Seph's mom

we're here to help

Duchenne is progressive and aggressive. It’s a tough, emotional journey and it shouldn’t be made worse because you’re fighting financial battles or going without important medical services and equipment when they’re not covered by insurance.

Whether you need direct financial assistance for travel to clinic appointments, equipment or home modifications, you have an unexpected urgent need, or you're just looking for guidance and mentoring, we’re here for you.

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A life with Duchenne is constantly changing. If you need assistance obtaining equipment that is not covered by your insurance or you received a denial letter, we are here to help.
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Home Modifications

Whether it’s home modifications, help with resources or financial assistance to make your home accessible, please reach out to us.
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All Duchenne patients should have access to good care. We're here to help if you need help with travel expenses to get to a Duchenne clinic or doctor appointments.
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Accessible vehicles & Modifications

Do you need assistance purchasing an accessible vehicle or modifying a van? Please reach out for help with resources or to request financial assistance.
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government programs

Do you need help navigating Medicaid waivers, SSI, Medicare, housing programs, etc.? We can assist.
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We understand that you can’t plan for everything. If you find yourself needing some unexpected support for an emergency need, please reach out.
For help, contact us at or call us at 833.428.3301

apply for assistance

The process is simple: just click below to apply for assistance.

get started
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MEET SOME OF the families we've helped

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Thank you to our sponsors & supporters who make this impactful support of families possible

Through the generosity of individuals, foundations, and corporate supporters, we have given over $850,000 in support to 700 families all over the country.

Thank you to our sponsors and supporters who make direct support of families possible.

If you’d like to help Duchenne families by supporting our assistance program, please let us know and we’ll be in touch!

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